Diagnosis - Stage 3 Rectal Cancer

My personal experience with my diagnosis

I have nothing but great appreciation for all the Doctors, Nurses, technicians, etc.. That were involved in my treatment. The DECH, Saint John and Halifax Hospitals have treated me with the most respect. I do believe my attitude played a big part . Below is my journal which I would like to share.

It all started around beginning of 2020. I started having issues. After a few months I decided it was time to see a Doctor. In March I saw Dr. Baker, he requested I get blood work. I went the following week for my blood work and went back to see Dr. Baker for the results. I was surprised and even think that the Doctor was surprised on how good my blood work results showed. He recommended a few things for me to try. He did put in paperwork for me to get a colonoscopy.

Over the month COVID happened, so nothing was getting done. My issues were progressing, but nothing could be done.

In June, things started to open again. I went to see Dr. Baker once again. He provided me with antibiotics and put in paperwork for the colonoscopy again. I contacted Dr. Koller’s office checking on when my appointment would be scheduled and found out that they are behind and may not get one till October.

About a week later I was getting frustrated and decided to go to the ER. They took blood tests and found that it has changed since my last one. I was to have a CT Scan scheduled.

The following week the CT Scan was scheduled. The results found a large mass in my rectum. An urgent colonoscopy was scheduled for Aug. 12^th.

Aug. 12^th. I went for my colonoscopy. I got the results immediately. I have cancer stage 3. So, an MRI will be done, and radiation and chemo treatments will proceed after the MRI and once going thru that I will have an operation to remove tumor. I am 64 years old, never been to a Doctor my whole adult life, very few colds or flu. Only time I was in a hospital I was about 10 or 11 years old for a kidney infection. Guess it is my time. The following will be my daily, weekly experience and thoughts.

Aug. 14^th. I had my MRI but found out it was one of two needed. The one today was to get images of my adrenal glands. My next MRI is scheduled for Aug. 18^th. This is to get images of my pelvis and lower rectal areas.

I am not doing too well in comfort; I have been constipated for 4 days. I am having a hard time with it and I know I am taking it out on Donna and others as I am irritable. I will make it up to them when I am better. Tracy has been a great help and has the right attitude I want, I do not want people feeling sorry for me, I will get thru this. Donna is trying to hide her feelings, but I understand how frighten she is over this.

Aug. 18^th. Had my second MRI, was much longer. Have a follow up appointment with Dr. Pawluk on Aug. 25^th.

Aug. 21^st. received call from Saint John Hospital, oncology department. Have 2 appointments on Aug. 24^th, one in the morning and one in the afternoon. Probably will get my treatment schedule.

Aug. 24^th. Seen Dr. Maloney first, she is the radiation specialist. She advised me that the Cancer did not spread into my upper organs, which is good. She then explained that the tumor is growing downward into my pelvis and affecting my prostate and into my tail bone. She then explained the treatment and that it would be for 5 weeks of radiation and chemo in pill form. She also explained that because of the radiation that there would be swelling, and this was a concern as it could cause my colon to be totally blocked. At this time, she mentions I would need to have a diversion surgery which meant I would need a colostomy bag. This will be permanent as there is too much damage by the cancer. This was my worst fear, but it is better than a body bag. She was an upbeat Doctor and very likeable.

Next, in the afternoon, I met Dr. Burnell. Total opposite of Dr. Maloney, she was straight to the point, which I did not mind. She did an exam of me checking for any lumps. All was good. She then proceeded on telling me the treatment needed.

I left feeling ok about all that was said. I had my daughter and sister listen in on the conversation with the Doctors so that there was no mistake in what I heard. We discussed it during the drive home, and it seemed to ease my sister a bit, but she is still very worried about me.

When we got home it was all explained to Donna. I could tell she was overwhelmed. I gave her time to digest. Over the next day she seemed to be more at ease as I keep telling her I am ok and will overcome whatever comes my way.

Aug. 25^th. I met Dr. Pawluk for my follow up with him. He mentioned basically the same as the other Doctors. He will be the surgeon that will be doing the diversion operation. He scheduled it for Sep. 02^nd. I will be in hospital for 5 days. He also advised that my tumor operation will be done 10 weeks after my radiation and chemo treatment is completed. I will be having the tumor removal operation in Halifax, which is a concern for me as it will likely be during winter months and have concern of poor weather conditions.

Sep. 02^nd. I went in for surgery, went very well. Now in hospital recovering. First few days I felt great, felt strong, then after 3^rd. day I was having trouble sleeping due to all the noises. The Hospital food was disgusting but ate it anyways. Made a promise to Donna. Finally got out on Sep. 07^th. I was glad, but still very tired. Had a rough time sleeping last night, just was not comfortable in the bed, so maybe I will try my own bed tonight. Got a call from Saint John for a PET scan on Sep. 10^th. I must say I do get frustrated, but I will stay positive as best as I can. I will be glad when the treatments start as this discomfort can sometimes be unbearable.

Sep. 10^th. Went to Saint John for the PET scan. Took about 4 hours. It was a long day but had no issues with the drive there and back. Enjoyed the Arbys as soon as I got into car to go home. Next appointment will be on the 14^th. to have my staples removed and then on 17^th. back to Saint John to prepare for my Radiation treatment.

Sep. 14^th. Had my staples taken out. Was a bit surprised they did not use any numbing cream. Dr. Pawluk said everything is healing very well. Almost forgot I now have a family Doctor, Dr. Snell, will be seeing him on the 18^th.

Sep. 17^th. Had my prep work for radiation treatment, treatment will start on Oct. 1^st. Also, I had my PET scan results and they found a spot on my liver. Looks like I will need an operation to take out the cancer. It was a long day, I felt terrible, tired, weak, very dehydrated, and difficult to walk, I think everything just finally hit me due to lack of sleep over the last week. I think it made Karen a bit nervous on how I was feeling.

Sep. 18^th. Started feeling better, yesterday was just everything catching up on me. On to the next step, go back to Saint John on Oct. 1^st. This I hope is the start of my treatment.

Sep. 29^th. Having a bad week, the pelvic muscles are getting weaker. Very discomforting trying to sit and now having hard time walking, hope the treatments work fast in shrinking the tumor. I would not wish this on anyone.

Received call from hospital, cancelled my treatment as the machine broke down. Now rescheduled for Monday Oct. 5^th. What luck eh?

Oct. 5^th. Finally started my treatment. Got the schedule, started my first radiation treatment. Started taking the chemo pills after supper. So happy I am finally going in the right direction. Treatment to end Nov. 09^th.

Oct. 09^th. First week of treatments completed. All went very well, no side effects. Feel tired at times, the drive is hard on the butt. All and all I cannot complain.

Oct. 16^th. Second week of treatments completed. Still going very well. Noticing the tumor is shrinking. Drive is tiresome.

Oct. 19^th. Start of week 3. Feeling good. Started feeling much better, energy level is increasing. Seen the Chemo Doctor on the 20^th. All going well.

Oct. 22^nd. Still feeling good, energy level is great, appetite is very well. Starting to gain weight back. Seen Dr. Maloney today and she was impressed on how well my treatment is going. Tumor is shrinking better than expected. They may change or tweak my treatments. The drive there and back is still tiresome. I appreciate Karen taking her time to take me to Saint John every day. I thought I would be able to do it, but I know my limitations.

Oct. 23^rd. End of week 3. Still feeling good. Glad the week is over though. The drive can be tiresome.

Oct.26^th. Start of week 4. Still feeling good, energy level still exceptionally good. Appetite even getting better.

Oct. 30^th. End of week 4, was a long week, treatment times changed made it feel like long days. Driving seemed longer than usual. Could see Karen was feeling the same about the long week. Feeling good still. Butt is getting a bit more annoying due to the radiation burns. Doctor gave me a new cream to help. Will be glad when I can sit comfortably, but all in all I cannot complain, coming to the end of treatment only 6 more. Doctor again was amazed on how well tumor is shrinking.

Nov. 2^nd. Start of week 5, only 6 more treatments to go. Seen Dr. Burnell, she checked my left butt cheek as she seen it was discomforting to me. She suspects I have an infection, so she ordered a CT Scan for tomorrow morning at 9 am. Wow, it is going to be a long day as my radiation treatment is not until 2:20pm.

Nov. 3^rd. Had to get up at 6 am, yuck, going to be a long day. Got to hospital by 8:30am. Went to have CT Scan, was taken in right away, scan only took 5 minutes. While I was getting IV put in arm, I got a call from radiation and they moved it to right after the scan was complete. Fantastic as I no longer need to sit and wait all day. While I was waiting for radiation, I seen Dr. Maloney, she had the scan results and found I had an abscess, so she gave me a prescription for an antibiotic. I will also have to get abscess drained, waiting for call when that will be scheduled. Got all done by 10:30am. Got home before noon. Butt is sore, cannot wait when this discomfort goes.

Nov. 06^th. End of week 5, only one more treatment to go. Was an exceptionally good week. Got call today for the draining of the abscess, appointment is for Nov. 13^th. Thought it was a simple procedure. Going to day surgery. Will be about 4 hours in total, procedure to drain abscess will be about 45 minutes, I will be put under for this procedure. After next week, the healing should start. Doctor from Halifax putting me on antibiotics as a precaution.

Blister on my butt cheek opened, very painful weekend. Pain pills not helping.

Nov. 09^th. Last day of treatment, so glad, it seemed so long, drives were tiresome. I am sure Karen must be relieved. So glad she was there for me, will never forget, really appreciated her help. I would like to find a way to show my appreciation, but I know she will not accept a special gift to her (but I will find a way). Seen Dr. Maloney, she advised to double my dose of pain pills. She indicated it will get worse before the healing starts. I kind of expected it. Drive home was very painful. Once home I took the pain pills, an hour later the pain lessened, was able to stand up better and walk without much pain. I have an appointment for CT Scan on Dec. 10^th. Also, Dr. Maloney wants to do a follow up on Dec. 11^th. Another trip to Saint John, hope weather is good. She is also going to talk with Dr. Pawluk to do a checkup on me, so waiting to hear from him for an appointment.

Nov. 10^th. Feeling a lot better today, pain pills are helping. Karen took my car to give it a good cleaning. When she returned, car was back to showroom condition. She sure has been a great help. Donna is doing well handling this ordeal better than I thought she would. I do believe it is taking a toll on her. She is trying her best keeping me comfortable. Nicci has been quite some help also for her. Between Tracy Karen and Donna, I thank God they are in my life during this time.

Nov.12^th. Received a call from Dr. Maloney, she advised her and Dr. Pawluk met and Dr. Pawluk felt it was better if I went to DECH to have operation on my abscess. She advised for me to go to DECH emergency as she will advise them, I am coming in and for me to prepare overnight bag. I went to hospital emergency and after triage I waited for 5 and a half hours. When Emergency Doctor came, he was unaware of my operation. He checked records and found no information. He checked with Surgeon and he was not aware. Emergency Doctor asked to check my abscess with an ultrasound and confirmed it was deep. He suggested I could have it drained, but I advised him of the interventional surgery I was supposed to have in Saint John for tomorrow but was cancelled as I was supposed to have operation today, so a simple draining was not advisable. So was a wasted day for me. I will be calling Dr. Maloney in the morning to see what happened. Not happy today.

Nov. 13^th. Contacted Radiation department to verify my procedure was cancelled for today due to yesterdays’ mix up. Was advised it was still on. I advised I would not make it and explained reasons. Holly from day Operations will contact Dr. Maloney. Dr. Maloney called and after I explained what happened, she was very apologetic and could not understand what happened as she ensured all was arranged. She advised she will contact DECH and try to reset up surgery.

I Received call from Dr. Brunelle office advising me of a follow up appointment for Dec. 02^nd. Was also advised I would have IV Chemo appointments at DECH starting Dec. 07^th. I advise individual I was not to have these till after my tumor removal operation in Halifax, so they will check on Monday.

Received call from Dr. Maloney and she indicated all arranged again and I was to go to DECH Emergency to register and Surgeon (Dr. Theibeault) would also advise them to contact her (time is now around 11:30 am) I am once again missing lunch and supper, last time I ate was breakfast at 08:30 am. I went to emergency, registered, they took blood. At least I now know things are going the right way. Waited about 2 hours and finally took me for a EGC and Surgeon to see me. After speaking with Surgeon (advising me of procedure) I was taken to my room (43C) Same room I was in during my Sep. 02^nd. Operation. So now waiting for when surgery was going to start. Time passes slowly, bored as hell, finally at 08:30 pm. They took me down to surgery. Woke up around 10:00 pm. And was taken back to room. Called Donna to let her know all went fine. I felt great for the first time in a long time, Pain and pressure finally subsided.

Nov. 14^th. Slept good last night. Feeling no pain (with the exception) of the blisters which was minimal. Giving me antibiotics and IV solution. Just waiting for Surgeon to check my progress and when I can go home. Breakfast came and it was disgusting. Did not have a choice, got Cream of Wheat and 1 slice of wheat toast. I ate a bit and drank an orange juice.

Dr. Gilles checked in on me and explained what they did in the Operation. He indicated that the abscess draining went well and they left cut open and packed with medicated gauze that would need to be changed daily for about 7 days.

About an hour later Nurse came in to change packing. She started to proceed but pain was extreme. She stopped and went to get pain killer medicine and try an hour later. I tell you the pain was like ripping the skin and muscles off my bones. I also noticed on the white board I was not going home till Nov. 15^th. Did not like that but what else can I do.

Dr. Theibeault came by and checked on me, I advised her about the issue of removing packing. She then realized it would be too painful and decided not to remove as previously directed. She indicated that during operation, skin was so thin she did not need to cut. There were 3 holes already opened, so she put an elastic device to make it 1 hole. She could not believe how I handled the pain as she seen how severe the abscess was. It was 3 ½” in diameter. I did not realize all the pain was from the abscess. I thought it was more from the blisters and burns. I though the abscess was more of the pressure. Dr. Theibeault indicated once packing removed I could go home (what a relief. Will not like when time to remove packing).

Nurse came in to remove packing, this is not going to be fun, but I had to lighten the situation and asked Nurse for a wood stick for me to bite down on. She laughed and told me I have such an amazing attitude. So, she started, damn the pain, she stopped to get a saline solution to wet it so it would be softer, I told her it is already halfway out to just continue, she did and wow glad that was over. She could not believe how well I handled such pain. It is over (thank God), all I must do is wait for the paperwork and I can go home.

Got the papers, going home. Called Tracy. I feel so good that the pain and pressure is finally gone (except for the blisters). Got my A&W hamburger and enjoying.

Nov. 15^th. Still feeling good, still have some pressure but more from swelling and the blisters. Walking particularly good and pain is minimal (about a 1 or 2). Can sit up much better and getting up easier. Taking strong antibiotics for next 7 days, then will go back to the other type that I was taking.

Nov. 17^th. Feeling good today. Mural care nurse paid a visit and checked on the tube that was supposed to be still in me, but it fell out part way on Saturday, so I removed it. Did not realized it was stitched in. Anyways, Nurse checked, and all seems okay. She will inform Doctor and get back to me. Nurse called later in day and advise Doctor does not need to see me as it was going to be removed later. Nurse will be coming 1 day each week to check on my radiation burns heeling. I am moving around much better, still have some pain, but tolerable. Expect healing to be slow possibly till the end of December.

Nov. 19^th. Not much happening, feeling good. Still in discomfort from the radiation burns, but it is healing slowly. I still must limit my walking as it aggravates the burns. Still cannot sit for long periods of times, so mostly lay around, but that causes my knees to stiffen. Dr. Pawluk office called and have a follow up appointment on Nov. 26^th. Still waiting for Halifax Doctor to setup appointment for operation. Will ask Dr. Pawluk when I see him. I did gain some more weight, now 147 lbs.

Nov. 26^th. Seen Dr. Pawluk today. He indicated I am healing well. I asked him about the operation, he indicated it would be scheduled approximately 8 weeks after my scans. He explained what the operation would involve. He indicated it would be a team of Doctors, one for removal of tumor, removal of rectum, one for removing my bladder (which was a surprise to me), will need to have an artificial bladder, a plastic surgeon to close off my butt (guess I need to change my name to Ken lol). Operation will take time for me to heal. Even though I was surprised of the details of the operation, I am waiting to speak with the Doctors in Halifax to understand what the operation entails. Once again, I accept what is needed, if I need to wear another appliance outside my body then so be it. I told Donna and Karen, hope it did not scare them too much.

Dec. 02^nd. Has been uneventful since Nov. 26^th. Healing is slow, still having discomfort, but able to move around better. Still staying positive but wish the healing would go faster as getting tired of the discomfort. Karen, Carolyn, and Laura have been over painting the kitchen, doing a fantastic job. She will also be doing more painting around the house. Glad to see it getting done as I hate painting and know it would be difficult for me to do but I was able to help some.

Dec. 10^th. Went for an MRI today, was quite long, also have a CT scan scheduled for tomorrow.

Dec. 11^th. Went for the CT scan, a lot quicker than yesterday’s MRI, only took about 3 minutes. Will find out results probably on Monday when I have my appointment with Dr. Maloney.

Dec. 14^th. Appointment with Dr. Maloney was particularly good. She advised that the MRI Scan and CT Scan were good. Showed that the tumor shrank quite a bit so will make it easier to remove tumor. CT scan was from the neck down and showed clean. The reason to have Bladder removed is due to having the prostate removed, basically all connected. Operation is major. I am pleased with the results. She will get in touch with the Halifax Doctor to get information on when my surgery will be scheduled.

Dec. 23^rd. Finally got call from Halifax. My operation is scheduled for Jan. 11^th. Good news, my bladder and prostate will not be removed. Doctor mentioned surgery will be difficult due to the many blood vessels in area they will be operating in. I will be needing a skin graft on left butt cheek as they need to cut out section where tumor is located and to ensure cancer does not grow back, I will be in hospital for about 10 to 14 days. Hope Donna does not worry too much.

Dec. 29^th. Received call from Saint John Hospital, Dr. Burnell set up a follow up appointment for Feb. 04^th. Also. My Chemo treatment (IV Type) to start Feb. 9^th. Will be discussing with her on the 4^th. How many treatments I will be having?

Jan. 07^th. Received a call from Halifax Hospital and was advised I need a covid-19 test before I arrive on Sunday. What a pain in the ass this is as it can take up to 48 hours to get a test scheduled and then 4 days for test results. I tried calling 811 and could not get thru to anyone, so I filled out the online form. I had no idea when I would get a call from the testing center, but in the email, I received showed as High priority. Received a call within 2 hours and appointment is scheduled for today.

Arrived at testing center and had test completed. I advised them the reason and they indicated I should receive the results before I leave on Sunday. I thought for sure this would screw my operation but think it will be okay now.

Jan. 09^th. Finally got my test results back (negative). All set to leave for Halifax tomorrow morning. With the new restrictions getting into Nova Scotia there was some worry it would cause issues; however, I got the approval, along with Karen. Unfortunately, Carolyn would not be allowed as she being there is not essential, so Karen will have to drive home alone. Sure, she will be nervous. Will be leaving earlier so that she will be back home before dark. Not sure what I will do for the 3 or 4 hours before my appointment for pre-op but guess I will figure something out.

Jan. 10^th. Started trip to Halifax. Hardly any traffic on road, making good time. When we got to the NS border, they just asked a few questions and let us go, never even checked my paperwork, or asked me any questions. Arrived at Victoria Hospital before 1 pm. We made real good time. I was admitted immediately, so Karen was able to leave.

Soon as I was admitted, my vitals were taken, filled out a bunch of paperwork and then had another covid-19 test done, damn they are annoying to get. They did not even ask about my test from Thursday.

So here I am in my room, Doctor came and seen me to finalize admission. Operation is at 08:30am. Glad it is finally getting done. I am not worried, I have no concerns, if I die during operation, I had a good life, nothing to complain about. I will get through this though as I am not done with my life, I intend to win the battle and continue with my life. I hope Donna does not worry too much; I will get thru this. Got a call from Donna, Karen is already near Dieppe, travelling for her was exceptionally good, she is going to go home instead of staying in Moncton. She even had no issues crossing the NB border. Glad she handled the trip better than I thought. Really appreciate her for what she is doing for me.

Jan. 11^th. Leaving room to go have my operation. Walked into operating room, they tried to put epidural in my back but could not. She tried at least 6 times so she called another Doctor in and she also could not get needle in, so again they called a 3^rd Doctor and he said if they could not do it then he probably could not, so he suggested another method. I really did not think at the time, was the beginning of a bad start and maybe I should walk out? Lol. They put the oxygen mask on me and then I was out. Took 9.5 hours. Woke up in recovery room around 9 pm. Feeling surprisingly good. Cannot say that for the other person there, they did not make it. Was taken back to my room around 10 pm. Noticed all the tubes in me, 11 in total. Anyways gave Donna a call to let her know I am doing well.

Jan. 12^th. Feeling good this morning. Doctor Helyer came to see me and let me know what was done. The tumor was quite large, black, and as hard as wood. She could not confirm if it all were removed, it was difficult for her, so she brought in another surgeon to assist. She was able to remove tumor without having to remove my bladder and prostate, but they did take out a section of the prostate a bit on the right and a bit more on the left side, that was great news. In the afternoon, physio came and got me out to walk, that felt great. I am in no pain, just do not like laying on my back.

Jan. 13^th. Feeling good today, slept off and on most of the time. Doctors and nurses come in and checkup on me, do vitals, take blood. Long days got out of bed twice during the day. Not allowed to drink or eat or sit up. Find it awfully hard staying on my back. They took the person across from me to surgery. Guess he did not make as the nurses came to collect his personal affects after about an hour. Been sleeping off an on throughout the day.

Jan. 14^th. Pretty much the same as yesterday. Noticing I do feel a bit better each day. Still no food or drinking allowed. Only allowed ice chips.

Jan. 15^th. Still feeling well. Finally got some tubes removed. The one down my nose was not fun to have removed, but glad it is out. Finally allowed a liquid diet. First thing was a strawberry popsicle, finally got taste. Lunch sucked, vegetable soup, but at least they had a pudding. Supper was cream of mushroom soup; no way was I even going to try. Day finally coming to an end, will see what will be in store for the weekend. I did have an interesting experience after Nurse gave some pain medicine, I was talking with Tracy on phone and then I looked up and saw a caterpillar. Nurse was checking my vitals at the time. I started laughing a bit, then I seen more caterpillars on the ceiling, and one was moving a c-clamp. Nurse was a bit worried that I was hallucinating, which I guess I was. It was interesting lasted about 2 hours. They are not going to give me that anymore. But did not need it anyways, pain was minimal, and the Tylenol was enough. The next morning, I looked up and seen these tabs in different spots, those tabs were where I saw the caterpillars.

Jan. 16^th. Quiet here this morning, less staff. Pretty boring day got to walk for a bit today. Food sucks as usual but was able to eat some of it. Feeling good still. Doctor came to see me, and healing is looking incredibly good. Expect to send me home either Monday, Tuesday, or Wednesday. That was good news.

Jan. 17^th. Same as yesterday. Feeling a bit better. It is boring though, days seem long.

Jan. 18^th. Finally, Monday. Doctor indicated more tubes come out. I tell you some of these tubes are painful. When pulling out I did not know the end was rectangular about 4 inches in length. It is like forcing a square peg in a round hole. So now I am on soft foods. Supper was ok, pork slices, potatoes with gravy. Doctor indicated I will likely be going home tomorrow.

Jan. 19^th. Doctor advised I will be going home today. Arrangements for an Ambulance has been made. EMTs arrived around 11:30am. Glad to be going home. Well, I am in the ambulance what a ride seemed like they were driving over railroad tracks. This vehicle has poor supports. Ride did not seem long, when we got to Moncton, new EMTs took over. Got home just before 5 pm.

Jan. 20^th. Good to be home in my own bed. Finding it hard though to eat or sit up a bit but feeling good. Happy to see Nicci, she is sticking to me like glue. Donna shows she is glad to see me home.

Jan. 21^st. Feeling good, Nurse came in to change my dressings. Later I started leaking a lot from my lower stomach stitches, so had Tracy call 911. Went to DECH and all was fine. Doctor prescribed an antibiotic as a precaution. Got home around midnight. Never been so fast going thru emergency.

Jan. 22^nd. Decided I need a hospital bed to make rising easier for me. Doctor Snell gave me a prescription. Finding a bed was going to be a task but was able to get one delivered today. What a difference much easier on me. Feeling good.

Jan. 23^rd. Nothing new still feeling good Getting stronger every day. It is quite the experience of what I am going thru but I seem to be accepting all that is happening quite easily. I have no idea why I am handling this so well, but glad I am. I guess I have a hidden strength in me I never knew I had.

Jan. 24^th. to Jan. 29^th. Started back to work on Monday, glad to be doing something. Feeling good. Received letter from CRA still requiring further information, so contacted Dr. Pawluk to find out if he got a letter from them. He received letter and provided the necessary information and mailed it back. Hope this gets approved this time. Later in week the last drain tube fell out, so Nurse was concerned so she contacted Dr. Snell and Dr. Haswell. They indicated no concern. At least no pain for taking that one out. So as each day goes by, I feel a little stronger each day. I have an appointment with Dr. Haswell on Feb. 1^st. so hopefully I will be able to sit up more. I then have an appointment with Dr. Burnell for follow up and my chemo appointments. I start Chemo on Feb. 09^th.

Feb. 01^st. Nurse came today to remove my staples and take blood. The staple removal was better than I thought it would be. Only hurt in a few areas. Dr. Haswell’s office called and cancelled my appointment due to me being out of Province. He asked for Nurse to send pictures of my butt. I am feeling a bit tired today, but as for the healing I am doing fine. My next appointment is with Dr. Burnell, this will be done thru Zoom app as I cannot drive to Saint John.

Feb. 02^nd. Dr. Haswell called and indicated flap looks incredibly good. No need to change dressings every day, now only every second day. Still can not sit up yet. Will be glad when I can and when the discomfort will finally go away.

Feb. 04^th. Everything doing well, feeling good, healing slowly. Had video appointment with Dr. Burnell yesterday. She indicated all looks good from my surgery. She did delay my Chemo as the leakage from my stomach is still happening. This needs to clear up before my chemo treatment. I will have another appointment with her on Feb. 18^th. in Saint John. My chemo treatments to start Feb. 23^rd. and will be every two weeks for 6 months. Dr. Snell made a house call yesterday to check my stomach where I have leakage, he does not have any concerns as I did have quite a major operation. Surprised he made a house call. Still tired of laying around, getting bored, will be glad when I can do more. Feeling stronger every day.

Feb. 05^th. to Feb. 11^th. Still doing well. Healing slowly. Will be glad when I can finally sit up. Getting tired of laying down all the time. Nurses come every 2^nd. day to change my dressings. Still have leakage in my stomach area. Donna is worried about it, but I am not concerned as it is not infected. Does seem to be slowing down. More pictures were sent to Dr. Haswell. Also have an appointment with Dr. Pawluk on Feb. 16^th. to check on my stomach. Hopefully, the leakage will be done as I do not want it to hold back on my chemo treatments. Finally got the CRA approval.

Feb 16^th. Cancelled my appointment with Dr. Pawluk due to winter storm. Rescheduled for Mar. 16^th.

Feb. 18^th. Went to Saint John for my appointment with Dr. Burnell. Road trip was not too bad. Worst part was getting in and out of car. Once at the Hospital, I did not realize how hard it was for me to walk the distance to the oncology department. Lucky the Doctor seen me right away. She indicated all looks good and my Chemo can start as scheduled. Drive home was a little hard, but glad I was home. This trip did take a toll on me as I have not been active as much since the operation. Finally got my Arby’s, trip for that was worth it. Looks like my stomach leakage is finally healing.

Feb. 23^rd. Started my chemo treatment today. Went to have the PICC line inserted. Did not realize it was going directly from my arm to my heart. During procedure, my head started feeling hot or numb and I was becoming disoriented and slurring my words. They immediately checked my heartbeat and blood pressure. It only lasted for about 3 minutes. So, about an hour or so later I started chemo. With all the process it took about 4 hours. Seems all went well. Now just waiting to see what side effects will occur. Tracy wanted to know if I asked if the issue during the line insert was common, but I did not ask. I just accepted it as another common issue. I find I am not concerned of any of my procedures. I do not worry, I just accept. I do not know why, for all that is happening I find I have no fear, not nervous about anything. I have this acceptance that even I do not understand. Is it because I have no fear of dying? Even though I have no fear, I do not want to leave Donna alone. I do feel though if I did not have this no fear, things would be different in a worst way. I find that having no fear is helping me get thru this ordeal. Too bad I could get over my fear of heights.

Feb. 24^th. Only side effect I seem to have Is drinking cold drinks. I tried a soda and Gatorade and it felt like I was drinking iced up drinks or it felt like pop rocks exploding in my mouth. I drank water at room temperature and no issue. I do not seem to have any other side affects yet. My appetite is good and still have taste buds. Probably going to take a few treatments before I see any side effects, but maybe I will be lucky as the chemo is the same as I was taking during my radiation treatments. The only difference is that it is in liquid form instead of pills. Time will tell.

Feb. 25^th. Still no side effects, was able to start drinking cold drinks again. I went to hospital to have the chemo bottle removed, it is on for only 46 hours, part of the chemo process. Getting into and out of car is getting a bit easier. I feel the tightness on my butt slowly subsiding. I called Walter and Millie to give them an update on my health. (I keep them up to date every couple of weeks as I know Millie is very worried about me). Love talking to Millie, she boosts my spirits up even more. She is such a wonderful person. Love her so much.

Feb. 26^th. Received a call from Dr. Helyer today. She was checking in on me and letting me know the pathology results. There is no cancer in my lymph nodes, none in my prostate and there are dead cancer remnants in which my body will absorb. I was able to keep my prostate and bladder as the radiation and chemo treatments worked very well. She indicated I should have a good quality of life. The chemo treatments I am getting now are to ensure any unknown cancer cells will be eradicated. She will leave the remainder of my recovery with Dr. Burnell. Great news. I did ask her about the size of the tumor she removed, it was 3.5 cm X 3.5 cm X .5 cm. I then asked her what the original size was, and she indicated it was 11.5 cm. and it has vessels reaching out to my lymph nodes, prostate, tail bone and pelvis. I did not realize the impact this was. I may have had to have my tail bone removed along with the prostate and bladder. I guess I was incredibly lucky that when I went to the ER, I had the right Doctor that decided to go further to diagnose me. If I had waited for my original colonoscopy for October or November 2020, I probably would have been past stage 4 and this journal would not exist. I have nothing bad whatsoever to say about my stay at all the Hospitals (DECH, Saint John General and Halifax Victoria). All the Doctors, Nurses, Technicians treated me extremely well. I feel it was my positive attitude played a big part in that.

Feb. 27^th. Dr. Haswell called today to give me update. He indicated all looks exceptionally good. Healing very well and he has no concerns. He advised it is all about movement now, so the more I move it will start feeling better. I was out today getting groceries so did a lot of walking. After a while though I was getting tired, but it was a good tired, felt I made quite an accomplishment, it was a good day. Love getting the good news.

Feb. 28^th. to Mar. 05^th. Pretty normal week, still healing slowly, feeling stronger and my appetite has been increasing. Mural Nurses coming less as there is no need to change dressing as often. I find I am moving much better and getting into and out the car much easier. Still will be a long time before I can drive, but I am okay with that. Should be a quiet weekend. Going to Saint John on Monday, should be a bit easier on me.

Mar. 08^th. Doctor Haswell called and advised that all looks good, healing very well, no need for dressings anymore and I can now go back to normal sitting, walking, etc. Went to Saint John for my Doctor Burnell appointment. She checked me over and said I am looking strong, and all is going well with me. My blood work is good. I asked her about me getting my teeth fixed during my chemo treatments and she advised I need to wait 1 month after my treatments completed. I got to have Arbys again today. I do feel stronger each day. I have my next chemo treatment tomorrow, hope it goes as good as the first one.

Mar. 09^th. Starting today I will only be entering in this journal once a week. I feel my recovery at this time is getting better each day, so no need to put my thoughts or happenings in daily. Went for my chemo treatment. Started at 09:00am. Finally done at noon. Find it very boring there, just sitting and waiting. Not much else to do, except checking phone occasionally. After chemo I did get a new effect, my hands started tingling and then after getting home, my feet started tingling. It is one of the side effects expected. I also have the same effect as before when drinking cold drinks. Weird feeling like pins and needles except 5 times worse, but only when I touch something cold or when I was outside. Lasted about 3 days as before. Hope that is all the side effects I get. Have not loss any hair yet, as far as I am noticing .Had an exceptionally good week, feeling stronger every day, appetite getting incredibly good, starting to feel like my old self. Walking better, going further in distance, easier to sit, started doing some little jobs around the house, but ensuring I do not overdo.

Mar. 20^th. Well, another week is over. Feeling good, stronger more energy. Did notice that my beard is thinning out, so guess I am starting to lose it. Hate that I am going to have to cut it but will wait another week. Do not seem to be losing my hair yet, but I imagine that will happen. Will miss my beard.

Mar. 28^th. Another end of week. My chemo treatment was cancelled due to my blood numbers down (both white and red cells), so new date will be Mar. 30^th. I have been feeling very well, my appetite getting even stronger and energy level getting better. I spent the day outdoors on Sunday. Hired a carpenter to change my garage doors to a single 16-foot door. Even helped him a bit, felt good doing some carpentry work, but I knew my limits and took rest periods. Was able to complete in one day. Next once garage door arrives will hire a company to install it.

Apr. 1st. Another week ended. Had my chemo on Tuesday. Only 9 more treatments. Needed a 2^nd, blood test to ensure my blood count was good. Was a long day, spent about 5 hours at Hospital! Rest of week was good, no side effects with the exception of the tingling in hands and feet. Still got my beard. Found out that the steroids they have been given me is the reason for my large appetite. Did some work cleaning up garage and tool room. Garage door to be delivered on Apr. 07^th. This project is almost done.

Apr. 08^th. Pretty quiet week. Been feeling good. Continued to work on garage. Ha Richard come over to help put the new siding on. All that is left is the installation of the garage door. Karen has been over doing more painting. Doing a great job.

Apr. 16^th. My chemo treatment was cancelled due to my blood count low. Will be rescheduled for Apr. 20^th. They will be giving me a new prescription to help increase my blood count. I will have to give myself a needle for 11 days after each treatment. Went to get the prescription and was surprised of the cost ($1940.00). I will have to have 10 more refills, wow that will be close to $20,000.00 for this prescription. Feeling good, feeling like my old self. Doing more around the house, but I do not overexert myself. I still get tired at times so will take breaks. Karen continues with the painting of the rooms. I am doing the trim work so makes me feel I can still do many things. Doorcraft came on Thursday to install garage door and door opener. Door looks and works great, incredibly quiet when open and closes.

Apr. 24^th. Similar week, my Chemo treatment was delayed again due to my low blood count. Got an appointment with Dr. Brunell on the 26^th. Still feeling good, lots of energy and good appetite.

May 01^st. Seen Dr, Brunelle on Monday, she indicated I look healthy, and all is good. Blood work is good so have my Chemo treatment on Tuesday. Treatment went well. Will be starting the Gastrofil needles this week, went to pharmacy to learn how to inject myself. They were quite surprised how easy I took it. Have 8 more chemo treatment to go. I find I am getting stronger, and I seem to have more stamina. Help Karen with the Greenhouse. Spoke with Millie and Walter to give them an update on my health. |Glad talking with them. Speaking of talking, I cannot seem to stop talking, lol. Must be the steroids. My mind is going a mile a minute. New term I’m using is chemo brain, Rachel Gorman gave me that excuse lol.

May 08^th. Another good week. I eat like crazy and full of energy. Had my covid vaccine on Tuesday, no side effects. Donna gets hers on Wednesday. Went to Karen’s again to work on greenhouse, was a cold day but got a lot done. Did not feel tired, seems my stamina is getting stronger. Have my next chemo treatment next Tuesday, hope my blood count is good. 8 more treatment to go. Also got a lot of work done in my garage this week, hope weather warms up soon so it can get started with the painting.